What It’s Really Like to Live with Uterine Cancer: A Day in the Life

Living with uterine cancer is a journey filled with physical and emotional challenges. Every day is unique, and the battle doesn’t just take place in hospital but also within the mind and body of those affected.

The experience of living with uterine cancer can vary from person to person depending on the stage of the disease, the type of treatment they are receiving, and their personal health conditions. But there are common threads that run through the lives of most people dealing with this type of cancer.


Morning: A Slow Start

Morning can be the hardest part of the day for many people living with uterine cancer. After a night with interrupted sleep – often due to pain, anxiety, or side effects of the treatment – waking up can feel like climbing a mountain. Fatigue is one of the most persistent symptoms, and many people feel it before they even get out of bed.

For some, pain is constant companion. It might be abdominal pain, cramping, or discomfort from surgery or radiation therapy. Sometimes, there’s a general ache throughout the body, the result of both the cancer and treatment designed to fight it. Medications are usually the first order of business- painkillers, anti- nausea pills and possible hormones. A slow and careful breakfast may follow, as nausea can make eating difficult. Something bland, like toast or oatmeal, often works the best, though some people struggle with eating anything at all in the morning.

Preparation for the Day:

Despite the physical discomfort, many people try to maintain as much of their regular routine as possible. This could mean showering, getting dressed, and even putting on makeup. For some, these small acts of self-care can be empowering, helping them feel a little more like their old selves, before cancer became a constant presence.

However, the energy required to get ready can be taxing. Simple task that were once second nature now require careful planning and breaks in between. If fatigue is particularly bad, even brushing teeth can feel overwhelming. The key is to listen to the body and go at a pace that feels manageable.

Doctor’s Appointments and Treatments:

Many people living with uterine cancer have frequent doctor’s appointments. This might involve checkups, scans, or treatment sessions such as chemotherapy, radiation, or immunotherapy. The hospital or clinic can feel like a second home, as patients often spend hours there multiple times a week.

Going to these appointments can be mentally exhausting. The waiting rooms can be filled with anxiety – waiting to hear results, waiting to see if the treatment is working, waiting for the next step. There's also the physical toll of the treatment itself. Chemotherapy, for example, can be draining, leaving patients feeling weak, nauseous, and completely wiped out. Radiation can cause localized pain, burning, and fatigue, while immunotherapy may trigger flu-like symptoms or inflammation.

During treatments, many people bring a book or listen to music or podcasts to pass the time, but the underlying tension is always present. Some find comfort in talking to other patients; others prefer to stay quiet and internalize their experience.

Dealing with Side- Effects:

Treatments for uterine cancer with a host of side effects. These can range from hair loss and skin changes to digestive issues and constant fatigue. Hormonal treatments, which are often part of the treatment plan, can cause mood swings, hot flashes, weight gain, adding another layer of discomfort to the already challenging experience.

Eating becomes a balancing art – trying to find foods that don’t upset the stomach exacerbate side effects, while still ensuring that the body is getting enough nutrients to support healing. Some people find that small, frequent meals work best, while others need to avoid certain foods entirely.

Afternoon: Managing the Rest of the Day:

After a treatment session or doctor’s appointment, most people feel completely exhausted. Afternoons are often spent resting, as the body tries to recover from the physical toll of the morning. For many, fatigue isn’t something that can be “fixed” by sleep. It’s a deep, bone-tired weariness that doesn’t go away no matter how much rest they get.

However, not everyone has the luxury of resting all day. Some people are still trying to work, at least part-time, or they may have children or other responsibilities to take care of. Balancing cancer with life’s daily demands can feel impossible at times. Many people feel a sense of guilt for not being able to do as much as they once could, which adds to the emotional strain of living with cancer.

For those not working, afternoons might be spent doing light activities like reading, watching TV, or knitting. Some people enjoy going for a gentle walk, as fresh air and movements can sometimes help with the fatigue and mood. But energy is limited, so every activity must be carefully chosen.

Emotional Rollercoaster:

Emotionally living with uterine cancer is a constant rollercoaster. Fear, anger, sadness, and frustration are all common emotions, and they can hit any time of the day. The uncertainty of the future is perhaps the hardest part. Some days, there’s a sense of hope – the treatment is working, the cancer is shrinking, and life might return to something resembling normalcy. Other days, despair, takes over, and the weight of the disease feels unbearable.

Support system are crucial during these moments. Many people rely heavily on their friends, family, and support groups. Having someone to talk to, whether it’s a loved one or a fellow cancer patient can make a huge difference. Counseling and therapy are also common for those living with cancer, helping them process their emotions and cope with mental strain.

Evening: Preparing for the Night:

Evenings are a time to wind down, but for many, they bring a fresh wave of anxiety. Nights can be lonely and long, with sleep often elusive. Worrying about the future, the next scan, or the progression of the disease can keep people awake for hours. Pain or discomfort can also make it hard to get comfortable.

Despite this, evenings are often when people try to focus on the things that bring them joy. This might be spending time with family, enjoying a favorite TV show, or working on a hobby. Some people find solace in journaling or meditating, using the quiet time to process their thoughts and feelings.

Night: The Endless Cycle:

For many people living with uterine cancer, sleep is fragmented. Pain and discomfort might wake them up multiple times during the night, or their mind might keep them from falling into a deep sleep. Insomnia is common, and many people resort to sleep aids or medications to get some rest. However, even with medication, sleep might not come easily. The fatigue from cancer is not something that can be fixed by simply sleeping more – it’s a chronic, deep-rooted exhaustion that permeates every aspect of life.

During the night, it’s easy to feel alone. The quiet hours can stretch endlessly, filled with the weight of the cancer and the uncertainty of what’s to come. Some find comfort in prayer or mindfulness practices, while others reach out to online support groups, where someone is always awake and ready to listen.

The Small Victories:

Despite the immense challenges, there are still moments of triumph and joy. Completing a round of treatment, hearing good news from the doctor, or simply having a day with less pain are all victories worth celebrating. Many people living with uterine cancer develop a newfound appreciation for the small things – a good meal, a sunny day, a quiet moment of peace.

These small victories help to keep hope alive. They remind people that despite the cancer, there is still beauty and joy to be found in life. They serve as a reminder that even though the road is hard, it’s still worth walking.

The Unseen Toll:

One of the hardest things about living with uterine cancer is the toll it takes on mental health. The fear of the unknown, the constant doctor’s appointments, the pain, and the fatigue can all lead to feelings of depression and anxiety. Some people feel isolated from their friends and family, unable to engage in the activities they once enjoyed.

Many people with uterine cancer experience a loss of identity. The disease can become all-consuming, overshadowing the person they were before. This loss of self can be incredibly difficult to cope with, and it’s something that many people struggle with every day.

A New Normal:

Living with uterine cancer is a constant challenge. It affects every aspect of a person’s life, from their physical health to their emotional well – being. Every day brings new challenges, and the journey is often long and difficult.

But through it all, many people find strength they didn’t know they had. They learn to adapt to their new reality and find ways to manage the pain, the fatigue, and the emotional toll. They learn to appreciate the small victories and to cherish the moment of joy and peace.

Living with uterine cancer is not easy, but it’s possible to find moments of light in the darkness. And for many, those moments are enough to keep going, one day at a time.

Dr. Mansi Shah is widely regarded as one of the best cancer doctors in Ahmedabad, with a strong focus on women's health. As a highly experienced uterine cancer specialist in Ahmedabad, Dr. Shah has dedicated her career to diagnosing, treating, and managing various forms of cancer, particularly uterine cancer. Known for her compassionate care and expertise, she provides personalized treatment plans that utilize the latest advancements in oncology, helping her patients navigate their cancer journey with confidence and hope.